Patient Registries

A better way to build clinical registries
Traditional methods for building and populating patient registries are slow and expensive, relying on researchers to seek out and recruit individual patients. For rare conditions, building registries in this way can take years before there is enough data to deliver true insights.
Using the TrialKit platform, now researchers can take a different approach – build the registry first, then allow patients to find it and register themselves.
Getting Started
Our TrialKit platform makes creating public or closed patient registries easy. Take a product tour below to see it in action.
BUILD
Easily build the registry infrastructure with TrialKit’s drag-and-drop functionality – no matter the condition or target patient population, creating the foundation of the database is simple.
PUBLISH
TrialKit allows you to make your registry public instantly. Or, if you prefer to keep your registry closed, TrialKit allows you to easily create a secure path for patients you invite into the registration process.
PROMOTE
Get the word out about your registry. Build awareness through social media, online communities and advertising to bring interested patients into the registry.
REGISTER
TrialKit has the tools to build an easy registration process for patients. They simply click a link from an ad or social media post then, after being directed to TrialKit (via the web or the downloadable mobile app), provide some basic information that helps determine if they are eligible for the registry.
Quick, Easy Process
- Patient sees an ad or post about the registry and follows the link provided
- Patient fills out a brief questionnaire in TrialKit
- The system automatically analyzes patient responses to determine if patient is eligible for the next step
- Once patient meets eligibility criteria, they follow the process to join the registry
- The TrialKit-created registry automatically anonymizes all patient data to ensure privacy

Better Registries, Faster
Today’s patients are smart and empowered. Giving them the ability to find and self-register has the power
to significantly accelerate the development of deep and insightful databases.
Leveraging Empowered Patients to Build Better Clinical Registries
It's time to find a better way to run clinical registries that works for today's population - without exorbitant costs and bottlenecks. In this post, we offer our own suggestions on accomplishing this and explain how it can be done right now.